Show Up and Start, Every Time
"Blessed be the LORD my strength, which teacheth my hands to war, and my fingers to fight." -Ps 144:1
High-Level Process Update
Round 2 of chemo is in the books, Round 3 starts this Monday. I didn't feel well around days 10-12 after infusing again this time, but different symptoms. No body aches like last time, just feeling nauseated, and Imodium hasn't worked that well if you know what I mean. The #1 problem on my mind to improve in the next round is to get faster and better at regulating bowel flow somehow. There are multiple constipating and loosening effects going on a different times, and in either case it's very difficult to eat - a big problem since my highest priority is maximum calorie intake.
Otherwise, in terms of side effects, the sensitivity of my hands and fingers to cold objects and air was a little worse this time. So I'll wear gloves more often. That's it.
I had MANY days in a row during Round 2 where I felt great, even better than normal. I guess the day 10-12 down time is over now, because I've suddenly felt normal again this afternoon. There are quite a few common side effects I have not experienced at all, like skin problems, bad rashes, mouth and tongue sores, finger and toenails falling off, etc. I've had none of that. I realize that can change, but I don't care - I'll just give thanks right now for God's tender mercies in making it relatively easy. Not to mention my favorite tender mercy of all so far - eating normal food! No joke, whenever I do feel like eating I am 10 times more thankful than usual to eat something I actually want.
Small Battles Won
One recent Tuesday night I came home from work and crashed. I curled up in my bed and pretended to sleep, although I knew it was short-lived. Maybe half an hour later I pulled myself together enough to get my gym clothes on and make the 12-minute drive to the Unger gym. The outside light was on, which meant he was already there. I stumbled in and slumped onto the bench beside the door, cowering under my heavy coat and hood.
My coach (who will go nameless this time to protect his comfort zone) gave me a pep talk about how important this was, all of which I knew was true. I fully expected to get 2 or 3 reps into my warmup set of squats and quit. But I had to prove bodily failure, in distinction from mental failure.
The warmup set was no big deal. Then the first real set of squats was no big deal. The second set felt even better. Before I knew it, we were at the last set - Deadlift. I probably complained about a few things along the way, and at least said out loud before deadlift that I thought I might pass out around rep 4. But I didn't, it was fine.
A small battle was won. Even if it was only in my own head, and if nobody else would have even considered it a battle, it was real to me.
So this past Thursday when I was curled up on the couch feeling sick to my stomach, waiting for my coach to come to my house this time, I knew there was a chance this workout would be fine - I just needed to start. Sure enough, the knot in my stomach faded during the first warmup set and I didn't think about it again until long after I was finished. Another little battle won.
I think my coach was right when he told me early on that most of my barriers would be mental. If I don't break through them to lift enough weight to build mass, none of this will work - but it won't be for a physical reason. I'm a little bit of a baby, as you all surely noticed by now. So it's probably hard for any of you to understand why these are battles for me - I'm just being transparent about where I am. David credited the Lord with teaching his hands to war and his fingers to fight... this is one of my prayers.
Other Mental Battles
I started reading a book by a man who had colon cancer and no longer has it (I'll avoid mentioning the title because I don't want to ruin it for anyone who likes it and benefits from it). His short story is that he had his cancer surgically removed, then when rogue and refused chemo afterwards in favor of natural remedies. I quickly realized this was not the kind of input I needed... He is very thorough in his research and documentation of studies that indicate in his view what helps or doesn't help cancer, but this ironically makes it all the more pessimistic.
If you don't already know this, there are two basic schools of thought on cancer treatment: The medical establishment which primarily administers chemotherapy and surgery, and the alternative crowd of individuals who have hundreds of potential all-natural cures, some of which are cheap and some of which will cost you as much as a second house. The latter crowd tends toward this basic underlying philosophy: Nature = Good, Cancer = Bad... Therefore, eat Nature and Cancer goes away. With this core belief, it is easy for them to say things like, "if you squeeze cranberry juice on cancer cells in a petri dish, they don't grow as fast," and then blame the pharmaceutical industry for not popularizing cranberries as a cancer treatment substance. This crowd typically ends up recommending a completely plant-based diet.
No doubt, highly processed and prepared foods consumed in gargantuan proportions as in our nation, especially with a sedentary lifestyle, contributes to all kinds of maladies, I suppose including cancer. But the underlying philosophy that nature fixes cancer is not credible - the Bible teaches one source of all sickness and disease: Sin. Nature was only completely good before the fall of man. Now it's a different story, as Rom 8 teaches: "For we know that the whole creation groaneth and travaileth in pain together until now. And not only they, but ourselves also, which have the firstfruits of the Spirit, even we ourselves groan within ourselves, waiting for the adoption, to wit, the redemption of our body." -Rom 8:22-23
Knowing that nature probably doesn't fix cancer, the message of the book in regards to conventional treatment was harder to hear. Many studies and statistics, and also conjecture and author's personal opinion, are brought forth in this book to make the basic case that cancer treatment by the medical establishment is all a conspiracy. They know chemotherapy only affords a small increase in life expectancy compared to no treatment at all, but they fail to disclose this because cancer treatment is so lucrative. The industry is unmotivated to improve treatments despite the dismal statistics, the narrative goes, because the economic gravy train is good enough as is. Natural remedies are not studied or publicly recognized to be effective because they would not be patentable by pharmaceutical companies. To top it off, chemo destroys the patient's body and gives them a miserable end that would otherwise be blissful.
I don't accept this. There may be a grain of truth in it, but I don't believe either that natural remedies are so miraculously effective, or that the medical establishment would not offer us a better solution if they had one.
I do understand that insurance companies will only pay for treatments that are 100% accepted by the medical community as necessary, which precludes anything new or innovative. If the same reasoning were applied in the science and engineering world, we would still be riding horses. Almost no experts at first believed a steam engine could work, or a gasoline engine, or a nuclear reactor, etc, etc. Such innovations we consider ubiquitous today only had a handful of proponents for the first 10-30 years of development.
I realize everyone has a different opinion on all these things - feel free to keep it, I am just being transparent on where I am.
I was in the midst of a mental battle over these things one day at work this past week. The one author who researched everything and supposedly knows how to beat cancer, he believes I'm going to be tortured by chemo until I die, at most a few months after I would have died with no treatment at all. I knew the message wasn't true. I knew it didn't matter to the Lord to save by many or by few (this is what Jonathan said to his armor bearer in 1 Sam 14:6 before they took on a garrison of the Philistines). I knew He didn't need any means at all, or He could use anything He wanted. I strolled around the parking lot to pray for a few minutes, then returned to my desk to munch reluctantly on leftover spaghetti and meatballs that Grace had made the night before. And Focaccia bread.
While I was chewing, a distant coworker approached my desk. I've known him for several years from other departments, usually from being on opposite sides of inter-departmental conflict. It was always cordial in his case, just business, but we didn't really know each other or talk unnecessarily. He began to drop a few bills on my desk and explained that he just wanted to encourage and bless me. I was so caught off guard that I can't quote exactly what else he said, but it was something like this: "God is with you. You are an inspiration to many of us. I am looking forward to hearing a wonderful testimony from you when this is all over."
I was stunned but managed to give him a hug before he left. I know the Lord sent him at exactly that time to encourage me and build my faith. It wasn't about the $50, and my new friend knew that. But it added weight to his words of encouragement. I knew in that moment that the Lord was with me, and that He was showing me this tender kindness along with so many other little things along the way, just so I wouldn't forget He was there. What a personal God!
Parting the Sea
I had been thinking about the parting of the Red Sea, and what that represented for the Israelites at that time: They were stuck with no way to escape the Egyptian army chasing them. No one had ever seen a sea parted with a dry road down the middle of it before, but that's exactly what happened. There was not a natural way out of that situation, so the Lord made a supernatural way. His people utilized it, despite the apparent risks.
And then my sister-in-law Nina gave Christina a CD of Ellie Holcomb - the title song is Red Sea Road. I can't say I've ever been a die-hard fan of hers, but I have come to really appreciate that song. The chorus:
We will sing to our souls
We won't bury our hope
Where He leads us to go
There's a red sea road.
When we can't see the way
He will part the waves
And we'll never walk alone
Down a red sea road.
The backdrop of the song is burying a loved one. I'm not dead, but neither school of cancer treatment thought has high expectations for me. So I take it this for myself - I am not burying my hope, and when I can't see the way I will keep running and trust His faithfulness to part the sea if needed.
Final Miscellaneous Thoughts
I never wanted to approach the length of the average Jeremy Summerlin Facebook post, but I am probably getting there... Just another paragraph or two: Some days I'm deeply impressed with a particular thought. For example, after my last post I was deeply impressed with a far more brief way of expressing it: The only thing in life that really matters is if your character and conduct pleases God. This sounds very simple, but the more real your impending death becomes to you, the more obvious this fact may become. The truth is, all of our deaths are impending.
Another day it hit me that it is pointless and stupid to miss any opportunity to be happy. Why think about potentially negative future things that you cannot control? Jesus taught this in Matthew 6.
Also, I noticed that whenever I envision the future, in the absence of a deliberate plan or goal, my brain paints the most dire picture possible. So I found that it doesn't matter if I don't know the future, my brain still assumes the worst and inserts this picture whenever I think about what things will be like 6 months from now, for example. The only way I know to counteract this is to define an expectation in accordance with mine and all of your prayers, and also define goals accordingly. This makes perfect sense, otherwise we shouldn't be praying. Maybe this is trivial to everyone else.
Until next time... Thank the Lord with me for all His tender mercies, and thank you for your encouragement and prayers.
Thank you, Jonathan, for sharing. Your posts always lift me up.
ReplyDeleteUpon every remembrance of you, I give thanks and pray for you.
Love you dearly, Sylvia
ReplyDeleteThank you again for the transparency Brother. I love this point and need to learn it.
Why think about potentially negative future things that you cannot control?
Love the song selection too. Never heard it before tonight.
Oh help us believe
You are faithful, You're faithful
When our hearts are breaking
You are faithful, You're faithful
Oh grant us eyes to see
You are faithful, You're faithful
Teach us to sing
You are faithful, You're faithful, You're faithful
And we will sing, to our souls
We won't bury our hope
Where He leads us to go
There's a red sea road
When we can't, see the way
He will part the waves
And we'll never walk alone
Down a red sea road
No, we'll never, walk alone
Down a red sea road
No, we'll never, walk alone
Down a red sea road
Yes sir - “help us to believe”, “grant us eyes to see”, and “teach us to sing”. No questions!
DeleteHey Jonathan. This is Trenton Stokes. I am praying for you. Appreciated your words here and the depth of thought as you process all of this. May the light of God's countenance pierce the dark clouds when they consume your vision. May the sure presence and peace of God cover you and your family like a blanket.
ReplyDeleteI will try to keep an eye out for future updates.
Grace and peace,
t
Mr. Stokes, thank you so much for your comment and prayers! I know you will say you were just following the Worldviews curriculum, but I appreciate to this day the many passages you had us memorize and retain for entire semesters at a time. For example, 2 Pet 1:16-21, “For we have not followed cunningly devised fables”, etc. God bless you, sir.
DeleteThank you, Jonathan. God's blessings on you and in you.
DeleteYou know it was for you too ;) don't bury your hope. He is faithful. There's a fight song on that CD too. A fried of mine who lost 2 babies sent me that CD while Sawyer was fighting. It's just a constant reminder for me.
ReplyDeleteI thought it was just for Christina. 😂 Thank you, what a special gift especially coming from you!
DeleteThank you for sharing this journey of hope, brother. Your transparency gives glory to the Lord, and blesses we who read it.
ReplyDeleteThese words of scripture, regarding the LORD'S character and purpose for us, have always given me strength in the day of battle, and I'm sure they are quite familiar to you:
Isaiah 40:28-31 (KJV)
28 Hast thou not known? hast thou not heard,
that the everlasting God, the LORD,
the Creator of the ends of the earth,
fainteth not, neither is weary?
there is no searching of his understanding.
29 He giveth power to the faint;
and to them that have no might he increaseth strength.
30 Even the youths shall faint and be weary,
and the young men shall utterly fall:
31 But they that wait upon the LORD shall renew their strength;
they shall mount up with wings as eagles;
they shall run, and not be weary;
and they shall walk, and not faint.
May He renew yours, every day, each battle, until the victory is won.
Very good, brother! I spent a morning this week meditating on that passage. The whole chapter has some very interesting parallels with Job 34-37, which I wouldn’t have understood until the past few weeks of course. Thank you!
DeleteJon, there is only one thing you can trust, read, or believe and that is on our merciful and miraculous heavenly father. I like to appeal to His compassion like what Jesus did for the young girl that was of no importance to the World, but she was important enough for the most incredible and merciful being that has ever walked to take notice and heal this young girl. Our Lord Jesus Christ knows you and knows you personally very well. He knows your heart. He knows your situation. He knows the outcome. He knows you!!! Everyone praying please beg God to have the same compassion on Jonathan as he did the little girl. God is just the same today. God show all of us you are just the same today so we can praise you with all our might. You will get praise either way... but you will have one more to praise you with your healing power. Your life is and always has been that of a righteous man. The World needs more men like you not less and God knows this and so do all of us that know you. - Your Brother and Friend in Christ.
ReplyDeleteWooohoooo! Love it, good sir, again! Thank you for your scripture and straight talk, brother. It is like steroids to anyone sick of CNN. Top 5 takeaways for me:
ReplyDelete* "Blessed be the LORD my strength, which teacheth my hands to war, and my fingers to fight". How to fight well is a learned behavior, not necessarily what comes naturally or first. It often requires a conscious effort to confront and eradicate natural impulses, in order to do what we know to be right. Any true warrior or true professional knows to trust their training, not their impulses. And connectedly, "natural" doesn't necessarily only mean good, since nature is now corrupt and decaying. As stated, the truth is that all of our deaths are impending, you just have a more visible reminder than some of us.
* Most of our barriers are mental. If you fail, make SURE it's a physical failure, not a mental one.
Sounds like a wise coach, sir.
* It is pointless and stupid to miss any opportunity to be happy. Oh how often I miss present joys, instinctively preferring to dwell on potential future negatives.
* In the absence of a deliberate plan or goal, my brain paints the most dire picture possible. How truly twisted I am to have such a natural bent toward planning for disappointment and failure. God rewards FAITH, not accurate predictions. No points awarded for "see I told you it wouldn't work". Such sinful proclivity can only come from a hopeless source, the devil.
* God was pretty proud of the Red Sea event. He refers to it several dozen times throughout the rest of the Bible, for a really good reason. "For whatsoever things were written aforetime were written for our learning, that we through patience and comfort of the scriptures might have hope." Rom 15:4. Great reminder.
Many thanks for being a great encourager! Thanks for showing us how to do it right. God rewards faith.
Thank you sir - great enhancements and additions to my points. My favorite: No points are awarded for accurate prediction of failure. Points are awarded, however, for faith. Very good.
DeleteDear Brother! Thank you for sharing your thoughts with us. There are no 'small' victories, for the Lord uses each one that you share to encourage a great many! For those of us whose minds are our worst enemy, the wisdom we learn from you strengthens our hands and hearts in our fight!
ReplyDeleteThank you… Let’s all get as much mileage as we can out of it - We don’t get very many opportunities like this!
DeleteThank you Jonathan. Our God is an awesome and so much more.
ReplyDeleteMy husband's "theme" song is/was "One Day at a time Sweet Jesus" especially during his chemotherapy.
One day at a time, sweet Jesus
Thats all I'm asking of You.
Just give me the strength to do everyday What I have to do.
Yesterday's gone, sweet Jesus
And tomorrow may never be mine
God help me today
Show me the way
One day at a time.
I'm only human
I'm just a man
Help me believe in what I could be
And all that I am
Oh, show me the stairway
That I have to climb
Lord, for my sake, teach me to take
One day at a time
One day at a time, sweet Jesus
That's all I'm asking of You
Just give me the strength to do everyday
What I have to do
Yesterday's gone, sweet Jesus
And tomorrow may never be mine
Lord help me today
Show me the way
One day at a time.
Sorry it appears I didn't leave my name. I'm Karen New house (Sarah Pipkin's mom)
ReplyDelete